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Supporting medically fragile
children and their families

Supporting medically fragile children and their families

Access PPC Resources

Project Joy and Hope is the parent agency for the Texas Pediatric Palliative Care Consortium, a collaboration of palliative care professionals from pediatric hospitals and hospices throughout Texas.

PJH Advisory Board member Marcia Levetown, MD, has compiled this list of resources. Let us know if you have additional links to add to this list.

Web Resources on Palliative Care

Basic Information and Articles on Palliative Care:

PPC Education and Curricula:

PPC Training Standards

ABP/ABMS

Hospice and Palliative Medicine: The ABP has received approval from the American Board of Medical Specialties (ABMS) to offer a Certificate of Added Qualifications in Hospice and Palliative Medicine. The ABP will partner with several additional boards to co-sponsor this certificate with each board awarding its own certificates but using a common examination administratively developed under the leadership of American Board of Internal Medicine (ABIM). The first exam takes places October 29, 2008 and will be offered biannually thereafter.

Billing and Reimbursement

Networking

  • AAHPM: Pediatrics Special Interest Group Chair - Jeanne Lewandowski
    [email protected]
  • American Pain Society Pediatric Pain SIG
    Chair: Steven J Weisman, MD

    Children's Hospital of Wisconsin
    PO Box 1997
    9000 W Wisconsin Ave MS 792
    Milwaukee, WI 53201
    (414)266-2775
    [email protected]
  • NHPCO has several meetings and a Pediatric SIG (ChIPPS)
    http://www.nhpco.org/

List serves

PEDIATRIC-PAIN MAILING LIST: The PEDIATRIC-PAIN mailing list is an international Internet forum for informal discussion of any topic related to pain in children. There are currently over 700 members on six continents. Appropriate subjects might include: clinical problems or questions, research problems or proposals, announcements of meetings, book reviews, and political or administrative aspects of children's pain management and prevention. To subscribe to the list, send an e-mail message to: [email protected]. The first line of the body of the message should read: subscribe PEDIATRIC-PAIN your-first-name your-last-name

The list is open to any professional or parent (or child!) with interest or expertise in the area. Once you are registered, any message you send to [email protected] will be forwarded to all members of the list. If you have questions or problems relating to the list, please contact Allen Finley at: [email protected] or [email protected]

NHPCO and ChiPPS have launched a pediatric listserve for NCHPP or eNCHPP members who provide services for children with life-threatening conditions and their families. Read more about the listserve and eligibility requirements to participate. Join the Pediatric Listserve

Advocacy

Research Advocacy and Opportunity

Other Advocacy

Other resources

Outcomes measures for Pediatric Palliative Care Programs

Listed under "Children's Hospital and Regional Medical Center" (in Seattle). You will need to scroll down at the link:
http://www.promotingexcellence.org/i4a/pages/index.cfm?pageid=3310

Books and professional resources

Provided by PJH Advisory Board member Marcia Levetown, MD